The Paul Ruby Foundation was founded by its namesake, Paul Ruby, who set out on a personal journey to help find a cure after being diagnosed with young-onset Parkinson’s in 2006.
The Paul Ruby Foundation is an entirely grassroots organization with volunteers serving as staff and on its board. Funds are raised through a variety of events and campaigns, culminating with the annual Concert for a Cure, a large festival in Geneva with live music and family fun. Each year, the foundation’s board comes together to listen to research proposals from Parkinson’s researchers at Northwestern and then votes on which projects to support. This year, the board chose the following research projects:
- Development and Validation of a Screening Procedure for Swallowing Disorders in Patients with Parkinson’s Disease – Jerilyn A. Logemann, PhD, Communications and Sciences Disorders at Northwestern University
- Assessing the Function of a Dopamine Neuron Subtype that is Vulnerable in Parkinson’s Disease – Rajeshwar Awatramani, PhD, Department of Neurology at Northwestern University Feinberg School of Medicine
“The value of the Paul Ruby Foundation’s support is immeasurable,” said Tanya Simuni, MD, director of the Northwestern Parkinson’s Disease and Movement Disorders Center. “Beyond just the monetary contributions, their work brings a great deal of awareness to Parkinson’s. Paul sets a wonderful example of how a person can have this disease, but still thrive and live a very full life.”
Northwestern’s Parkinson’s Disease and Movement Disorders Center is the only National Parkinson Foundation Center of Excellence in Illinois. The center provides innovative, multidisciplinary care, while also conducting research to extend knowledge and treatment of movement disorders. There is an emphasis on education and support for patients, families, caregivers, healthcare providers and the community. For more information, visit the center’s website.